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Hi and welcome to Breast Buddies Forum!

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Just got some bad news from my PS

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Funkygirl
laetitia
Stephy x
lea1983
kayla
COOKIE
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eastla
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Lynnie
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Just got some bad news from my PS - Page 2 Empty Re: Just got some bad news from my PS

Post by Lynnie 23rd March 2010, 8:50 pm

cookie wrote:So sorry to hear this Lynnie. It isn't due to the drains that you need an overnight stay hun, plenty of girls have drains and have day cases but if you're a known risk of complications post-op you will be required to have an overnight stay hunni. I know it's a lot more money for you, but when you weight that up against your health and the care you'll recieve after your surgery, it's cheap at the price for peace of mind IMO. Good luck sweetheart. Hug

Thanks Cookie, yeah you're right. I've just been getting so excited and it felt like a big blow. I can't back out now and like I said before, I would have rather stayed overnight anyway. xx
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Post by Lynnie 23rd March 2010, 8:51 pm

emma4 wrote:Ohhh ok :( well i hope you manage to sort it out x Hug tc

Thanks hun, thanks everyone. You girls are the best group hug
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Post by COOKIE 23rd March 2010, 8:55 pm

Lynnie wrote:Thanks Cookie, yeah you're right. I've just been getting so excited and it felt like a big blow. I can't back out now and like I said before, I would have rather stayed overnight anyway. xx

Understandably it was a blow for you hun Hug But with that positive attitude you have, you'll get through this! xxx
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Post by Lynnie 23rd March 2010, 8:57 pm

mizzpink23 wrote:oh bless you hun, how annoying for you as your soo close!
yeh yours are higher than mine, mine were 85 the week before i had my op on my last blood test results, which 85 is good, so 92 is far better, i dont know why they want you to defintly have a transfusion tho, but i guess they are just being safe rather than sorry.
transfusion does sound scary! and i was told i would prob have to have one, but somehow in the end i didnt, but i did talk to a nurse and she said do not worry about the transfusion, its very safe, so youll be fine, plus i spent most time worrying about bleeding to death in the run up to my op,that i mite aswell of just had the transfusion as it would of saved me alot of worry x
so whats next, are you under a heamotolgist?? xx

I'm so glad I mentioned it to the PS now at my first consultation. I might not have done if I hadn't read your posts. I should be grateful that I've not just found out the night before!

I know what you mean about being scared of bleeding to death! I nearly have to have a c section with my first baby and was convinced they wouldn't be able to stop the bleeding! As it was, there was no problem at all.

Is it just me or is it a horrible thought that you'd be given someone else's platelets or blood?

I've got to tell my PS tomorrow what I want to do and she's going to have a word with the haematologist. I think I'm just going to have to put my fears aside and go for it. It's gotta be worth it surely?

xx
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Post by mizzpink23 23rd March 2010, 9:06 pm

well it can be sorted so stay positive x

if youve had a normal birth with no major bleed then thats a really good sighn too, plus you can have low platelets,but the platelets that you do have can clot really well, so have you had a clotting test done too??

yes its a gross thort of been given someone elses blood, lol, you dont know where it come from, ha ha, but just try really hard not to think like that, and think of it as a good thing,its going to help you x

its defintly worth it hun, i really hope you manage to sort it out, let me no how you get on?? xx
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Post by kayla 23rd March 2010, 10:41 pm

Oh poor you!! Just a bit of support and positivity for you on the platelet transfusion - my 2nd daughter had one and was absolutley fine. Goes in through a normal cannula etc.
The last thing you want is to bleed badly, it will really affect your healing at the very least. At 92 your platelet count is quite low, normally should be between 150 to 400, the risk of increaded bleeding comes in between 80 to 100 so you are midway-ish in that range I think that you should be inspired with confidence that they are being this careful with you!! Not very helpful, convenient or cheap for you though so I do sympathise!

One last thing, are you due to have a period because your platelet levels can dip at this time?

Hope you do find the extra money though, good luck x
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Post by RoxyChick 24th March 2010, 12:09 am

Some great advice from the girls here.

I would consult with a specialist in this case, they may be able to suggest ways of raising your count or there could be other options that wouldn't mean you have to have the transfusion. Anything to lesser complications would be best.
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Post by lea1983 24th March 2010, 7:20 am

hey hunnni hope all is well defo find out about iron levels from doctor also as others have said I was a daycase with drains just had to stay till early evening with them xxxx
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Post by Grace 24th March 2010, 8:13 am

Hey Lovely
Hope you are OK, thinking of you
Lots of love and big hugs
Grace
xxx
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Post by Stephy x 24th March 2010, 9:16 am

So sorry to read your post hun :-( i hope you can get sorted soon Just got some bad news from my PS - Page 2 571992 i have the opposite problem...my blood clots too easily. But all i had to have was the heparin before my surgery (had it all the way through my pregnancy)

Hope Talking with Mizzpink has helped

Fingers & toes crossed for you xxxxx
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Post by laetitia 24th March 2010, 9:33 am

Hi Lynnie I just read your post
I feel so much for you Just got some bad news from my PS - Page 2 571992
Really hope you don't have to postpone your BA
after so many expectations..
Wish you good luck with your haggle for the overnight cost
xxx
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Post by Funkygirl 24th March 2010, 9:48 am

Awwww Lynnie just read your post hun, I'm so sorry to hear this, I know how excited you have been.The girls have given some great advice, I would try and seek advice from your GP and see what they say hun, also do some haggling on price, you never know what happens!

It's a minor setback hun but I think if you can get the price down a little, companies are generally open to negotiate. Good luck and let us know how you get on.

Sending you big hugs Hug x x
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Post by Lynnie 24th March 2010, 12:56 pm

Thanks everyone Hug

I've got 'til Friday to decide what I want to do. I've basically been told that the fixed price is FIXED, pretty much the same as Mybreast then. It'll be £4962 so will just have to try and find the extra money. 4 grand sounded a lot but that's virtually 5 grand and it's making me ask myself how I can justify that!

I don't think I can get this far and start over though, or try and convince myself that I'm happy as I am. I took some photos the other day and was disappointed to see that my boobs look worse than I thought they did! sad smile

I really appreciate all your support girls xxx
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Post by shelley.j 24th March 2010, 1:40 pm

Just read your post Lynnie Just got some bad news from my PS - Page 2 571992 Good luck and I am sorry to hear about whats going on X really hope you can find the extra money X Take care, Shelley
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Post by lea1983 24th March 2010, 1:43 pm

Just got some bad news from my PS - Page 2 571992 aww hunni you will be surprised how fast you can save when you have a goal , don't get disheartened and you certainly don't have to justify getting new boobies its amazing what they can do for how you feel about yourself and your confidence xxxxxxxx
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Post by mizzpink23 24th March 2010, 2:00 pm

hi ya, isnt there anywhere else that you could go for your op, i know uve picked ure surgeon etc, but there are places that are cheaper, but are just as good,its just an idea, but like lea1983 said,its suprising how quick you can save when you want something so bad x
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Post by nads 24th March 2010, 2:08 pm

Sorry to hear this doll, I hope you get it sorted and manage to get your BA x
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Post by Lynnie 24th March 2010, 4:39 pm

Thanks girls. My OH is working overtime all day on Friday to put some money towards it, lol.

Latest is that the haematologist has told my PS that my platelets aren't low enough to have to be given a transfusion so that's good news 😁 The only time I'd need one would be if something went wrong.

Unfortunately she didn't follow the news with 'you won't have to stay the night'. Something else her secretary said that alarmed me a bit was that it would cost more if I ended up having an emergency transfusion. Surely fixed price includes everything if things go wrong, shouldn't it?!

x
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Post by mizzpink23 24th March 2010, 6:12 pm

well i wonderd that aswell, but my mum said she thinks thatif something was to of gone wrong, and i needed additional care/tests etc, i would have to pay that on top of the fixed price fee, but i think given that your platelets are still satisfactory and wont need the transfusion then i think thats a good sign and altho they are still low, they arnt terribly low.i wonder why you wasnt put under a heamotolgist by ure gp, to monitor your blood tests in the run up to ure ba?? as i after 5 months of being under a heamotolgist i finally got the go ahead by her to have my surgery, and by my gp, who is also a heamotolgist.it just felt like i had proof to give my surgeon that i was fit for surgery.
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Post by kayla 24th March 2010, 8:50 pm

Lynnie wrote:Thanks girls. My OH is working overtime all day on Friday to put some money towards it, lol.

Latest is that the haematologist has told my PS that my platelets aren't low enough to have to be given a transfusion so that's good news Just got some bad news from my PS - Page 2 991311 The only time I'd need one would be if something went wrong.

Unfortunately she didn't follow the news with 'you won't have to stay the night'. Something else her secretary said that alarmed me a bit was that it would cost more if I ended up having an emergency transfusion. Surely fixed price includes everything if things go wrong, shouldn't it?!

x
I guess if the emergency occurred during the op with no pre-existing evidence that it was likely to happen, then you would be covered?? Kinda like insurance, pre-existing conditions etc are always excluded.
Unfortunately the risk for bleeding isn't over once the op is, especially if you don't need to have a platelet transfusion, so I would assume that they are not going to change their minds on the overnight stay.
I would see if you could get a reduction on their charge for overnight though, £800 is waaaaay too much!! You could have suite in a London Boutique Hotel with naked Swedish(man!!) 30 year old ( showing my age...any younger than 30 would be yuk!!) feeding you grapes during recovery for that.
Seriously though, I realy feel for you, just try and relax and try and think what will be will be. All the things in my life I've really had to try for I've enjoyed much more and for far longer than those that came easy.

xx
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Post by Lynnie 25th March 2010, 11:02 am

mizzpink23 wrote:i wonder why you wasnt put under a heamotolgist by ure gp, to monitor your blood tests in the run up to ure ba?? as i after 5 months of being under a heamotolgist i finally got the go ahead by her to have my surgery, and by my gp, who is also a heamotolgist.it just felt like i had proof to give my surgeon that i was fit for surgery.

Erm, I haven't even told my GP about having a BA! Blush Did I ought to be going to see him?

Do you know the reason for your low platelets? A haemotologist looked at my blood tests when I had my baby and he said that I have ITP - Idiopathic Thrombocytapenia Purpura. Idiopathic meaning that they haven't got a clue what's causing it! Shocked Because it's never caused me a problem it's just been left that I've got it and that's that.

x
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Post by Lynnie 25th March 2010, 11:09 am

kayla wrote:I guess if the emergency occurred during the op with no pre-existing evidence that it was likely to happen, then you would be covered?? Kinda like insurance, pre-existing conditions etc are always excluded.
Unfortunately the risk for bleeding isn't over once the op is, especially if you don't need to have a platelet transfusion, so I would assume that they are not going to change their minds on the overnight stay.
I would see if you could get a reduction on their charge for overnight though, £800 is waaaaay too much!! You could have suite in a London Boutique Hotel with naked Swedish(man!!) 30 year old ( showing my age...any younger than 30 would be yuk!!) feeding you grapes during recovery for that.
Seriously though, I realy feel for you, just try and relax and try and think what will be will be. All the things in my life I've really had to try for I've enjoyed much more and for far longer than those that came easy. xx

Thanks kayla. Looks like you're right! I just phoned Spire and they said that a blood transfusion is not included in the fixed price and if my PS thinks I may need one then she should get in touch with them so they can quote a price. It already stands at £4926 and I think a transfusion will cost a couple of hundred at least!

Wow, I really like the idea of the London Boutique Hotel and naked Swedish Man feeding me grapes! Age 30 would be just right, my OH is 44 so 30 would be GREAT! Hysterical They won't budge on price unfortunately disappoint

You're right though about the things you try longer for being more enjoyable than things that come easy. I'm just starting to wonder if I'm putting myself in unnecessary risk! When people start talking transfusions it's scary!

x
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Post by mizzpink23 25th March 2010, 12:09 pm

well i think it would be better if you told your gp, as they may be able to help you, by writing a note to say your ok for the op, and pass you onto a heamotolgist where you can have regular blood tests and if your platelets stay at a reasonable level, you will get medical clearence to say your ok for surgery.i have heard of itp before, but mine low platelets are because the blood flow around my liver is gushing out the portal vein, as apposed to flowing ,causing the platelets to be shunted to my spleen and hidden.weird?? no one knows why this is happening but i take tablets everyday to control/slow down the blood flow. xx
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Post by Lynnie 25th March 2010, 12:32 pm

oooh right, never heard of that before. Shocked It's a good job you found out about that then.

I'm waiting to hear from my PS's secretary today to confirm the definite price and how much a transfusion would cost. It's good to know that you had no problems though and my levels aren't as low as yours were.

I can't believe 3 weeks has gone by since you got your new boobs! Hope you are healing well x
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Post by mizzpink23 25th March 2010, 1:20 pm

well good luck , hope the transfusion isnt too expensive,ill keep my fingers crossed, my levels were 85,000 and i was fine :) x good luck!!!! x
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