probably a long shot but, if u can help?

Hi girls,

So it goes like this... I have not had ba surgery, yet, but I'm really at a lost end and need to see if anyone can help me with this one. Is there anyone out there who has had a ba that also has MS (multiple sclerosis)? or any other neurological or autoimmune disease? I have MS and this is the main thing that has been holding me back from going through with it, the not knowing what kind of an impact it could have on the MS is hard to comprehend.
(for those who don't know, MS is a condition which causes the body's immune system to attack itself resulting in symptoms ranging from numbness to paralysis. There is a posibility that this surgery could have an impact on symptoms and thats what I'm trying to find out)

The kind of things I need to know so that I can get some kind of an idea is, did it bring on an attack? did symptoms get worse? is the condition suffering long term because of the implications of a ba? I have searched forums but cant find anything that has already been written about it. I really am at a lost end so if anyone could throw anything my way I am all ears. If you have or if you know of anyone who has been through a ba and lives with MS I would really appreciate hearing from you.
Hearing anything about this would help me so much with making my final decision and whether it would be worth the risk in the long run.

Told you it's probably a long shot asking! lol.

Thanks for reading this one... xxx

Heya hun, I see where you're coming from with the pros n cons. I don't know much about MS... the onl person I know affected by it was my friends mum... but see didn't have a BA...so...

Have you tried seeking the advice of a group like the BAAPS, maybe an enquiry about any surgeons that have done surgery on anyone with MS and the results... maybe the can even put you in contact with someone?

You might get some luck on the NHS too... not sure...I'm not much help sorry xxx

I dont have MS but didnt want to read & run. Im sure ive read someone on here who has had a BA has MS too. Have you seen a surgeon yet? xx

Hi hun! I'm afraid I really can't help you with your question (that was useful wasn't it.. not! )... there are a few companies around that you can take a 'no obligation' consultation with, and I'm sure that they will be better qualified to either answer your concerns or to point you in the right direction to find some answers.

I wish you well on your quest. Angel xx

aww hun I hope you find out that you can get what you want.... but the others are right, you need to get professional advice, only a qualified surgeon can tell you what your options are... good luck

I agree hun - get some professional advice as there MUST be advice out there on this.

Sorry I can't help but I hope you get some info and are able to make the right decision for you...

C x

Thank you all so much for responding to me, I really do appreciate it

BoobiePrize wrote:Have you tried seeking the advice of a group like the BAAPS, maybe an enquiry about any surgeons that have done surgery on anyone with MS and the results... maybe the can even put you in contact with someone?

boobieprize - thank you so much for your suggestion, I feel dense saying this now but I never even thought of enquiring with BAAPS for help with this. You're great, thanks. I will be right onto it lol.

BlondeBarbie wrote:Have you seen a surgeon yet? xx

moonmar wrote: you need to get professional advice,
only a qualified surgeon can tell you what your options are

Angelpie wrote:there are a
few companies around that you can take a 'no obligation' consultation
with, and I'm sure that they will be better qualified to either answer
your concerns or to point you in the right direction to find some
answers.

Thanks for responding to me. I'm now kicking myself for not adding this to the post to start with. I haven't actually been to see a surgeon yet (wanted to get as much information together as I could so I sound like I know what I'm talking about lol), however, I have already made enquiries with Mybreast, transform and the harley medical group (I talked with transform about it 5 or 6 years ago). They all said that it is possible for someone with MS to have a ba. Mybreast inparticular were were really helpful. The girl who I spoke to actually got in contact with one of the founding surgeons who put the whole 'mybreast' thing together. She called me back a day later and told me that he said that as long as the surgeon performing the ba can have contact with my MS consultant then he doesn't see any reason why I can't have it.

I suppose by me asking others their experience, it was not necessarily for the experience of whether a surgeon was ok with performing the surgery but more of were there any after effects from actually having the surgery. In theory, surgery should have no different impact on a person with MS than a person who doesn't. The reason that makes it a little more complicated is that MS is an unpredictable condition and even though it is safe to perform the procedure, it may have an unpredictable impact on the person - the body attacks itself so there is no guarrantee that it wont attack even more once a foreign body is placed on its chest, therefore maybe causing an attack with could lead to terrible consequences.

It's just my curiosity wondering if anyone had any bad effects like a severe relapse/attack that made them lose the use of some kind of bodily function.
I know, not a positive way to look but never the less, thats still something I have to weigh up.


You have all been really helpful with your words, thank you once again


carrie, I couldn't help but notice your ticker - 2 days to go!! good luck (said with big smile :) )

hi sweetie, i just wanted to say good luck with your research and i hope you get the answers you are looking for.
hugs
amanda
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weichardt wrote:hi sweetie, i just wanted to say good luck with your research and i hope you get the answers you are looking for.
hugs
amanda
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thanks amanda :hugme:I see that your wait is almost over with, looks like you are going to bring a whole new meaning to the term 'you've got that friday feeling!' - good luck! xxx

canoli wrote:

weichardt wrote:hi sweetie, i just wanted to say good luck with your research and i hope you get the answers you are looking for.
hugs
amanda
xxxxxxxxxxxxxxxxx

thanks amanda :hugme:I see that your wait is almost over with, looks like you are going to bring a whole new meaning to the term 'you've got that friday feeling!' - good luck! xxx

yes im soo excited!!!!
let us know how you get on hunni, and what you decide to do.
hugs
amanda
xxxxxxx

Sorry lovely, I can't help either. Just wanted to say welcome to the site and I hope you find an answer to your question soon, I can imagine it must be a tough decision to make, so I'm glad you're taking time to reasearch it.

All the best lovely

xx

I dont have MS but its good you're going to go on some consults, i would suggest seeing BAAPS surgeons to discuss it with. Its positive to hear them say it should be ok, have you discussed it with your dr yet ? x

Unfortunately I can be much help, and I can't say what hasn't already been said (I know alot of help aren't I lol) but your doing the best thing by researching and making sure it's the right decision in the end instead of just jumping into it and asking questions afterwards. All the best xx

Hiya hun. I dont have MS but i have ME/CFS. I realise that my condition isnt as bad as MS but just wanted to reply as i had the same worries. I go to a CFS clinic where i have a very helpful Occupational Therapist and she discussed the re-op with me as i hadnt been diagnosed before my first BA. She told me that GA's can have a negative affect on certain conditions and that it was likely that i would have a mild relapse after my re-op due to the affect of the GA on your body.
I, like you, was worried about that but she helped me plan the weeks leading up to the op and gave me a lot of advise on what to do to try to avoid a BAD relapse.
Im 3 days post op now and yes, im feeling it, im very tired and have some of my usual symptoms but i think it would have been much worse if i hadnt prepared.
I guess what im saying is that you need to talk to whoever looks after you, your GP etc and get as much advise as possible beforehand and find out anything you can that will help afterwards.

All the best hun xx

hiya. i don't have MS, but i had some blood taken a couple of weeks ago because i have a lot of joint pain. the results came back and they want me to have more tests done in 3 months time. they are checking my autoantibodies,- i think they are checking for autoimmune diseases. the doctor also said my kidneys were 'boarder line' and its probably because of the amount of nurofen i've taken to dull the pain in my joints.

I talked this all through with my doctor, because my BA is booked before i will go back for the second lot of tests. my doctor said it was nothing to be worried about and to go ahead with my BA.

Perhaps go and see your GP for advise. i was really surprised by mine as he was just supportive and didn't quiz me at all on my motives for wanting a BA.

Lynz x